Yesterday, Emily had the next step in her neurological evaluation done. We went to Children's Hospital and she had an MRI done of her brain. Dr. Tervo, the neurologist over at Gillette Children's, ordered an MRI, extensive blood work to do chromosome testing, DNA testing, etc. She's having a hearing test on Friday and her vision checked next week. Last week she had a physical therapy evaluation done at Gillette. They are going to give us a guide to outpatient things we can work on with her to improve her motor skills. She was rated as having motor skills of a 24-28 month old. She has shown improvement since she's been going to school and getting 1:1 work with the therapist weekly, but we'll need to work with her through the summer.
Anyhow, we went to Children's yesterday at 8am. She got right into the Radiology Dept. They put the numbing stuff on her arms to get an IV going for the sedation medicine. Poor kids has veins like me, no good ones for an IV. They struggled finding one and after digging around for a few minutes, success and the screaming stopped. We went through the sedation medication with the pediatrician who would be monitoring her throughout the scan. He said that the medication would take effect within 5 seconds of it going through the IV. They weren't kidding, she was out cold in about 2! I wonder if that is available for bedtime use??? (just kidding!)
Anyhow, she was gone to the MRI room for about 40 minutes and then brought back and started waking up. She had a really tough time coming out of the sedation. Very ornry and cried for a long time. Finally, she just popped to her old self and was ready to go home. But only after we went to Grandmas to get her brother. She kept saying "I miss Louis Dano, I miss brother."
It was so cute.
I didn't bring the camera along to the MRI, we didn't need to memorialize that trip to the hospital . . . she was such a trooper and did so great. Dan and I were so proud of her!
Last night, we went to her school for the end of the year social. They had live music, cookie and ice cream. We wanted to meet some of her friends parents to hopefully get together over the summer; especially her best friend Emmett. We looked all over for him and it turns out he was sitting right behind us. It's such a small world! Emmetts dad was a friend of mine in highschool. We haven't talked since graduation! He went to St. Thomas, we all hung out in the same group of friends. What a coincidence.
Anyhow, they were glad to meet Emily too and they're anxious to get together and play this summer.
I have a couple of pictures, but of course, they're still in the camera. Will post tonight or tomorrow.
Grandma Conrad’s Rhubarb Cake
3 months ago


